So PT this week, well, Monday went good. And then there was Thursday, where I sorely overdid it, trying to step over things and then cockily walk afterwards. What was I thinking??!?!?!?
I do know better. I have paid dearly for the rest of Thursday, Friday and now into Saturday. Friday PT went better than expected but balance and walking overall, not good, falling, not good at all. I have relegated myself to the second floor for the weekend. Please forgive me if I am antisocial. This coming Wednesday is my appointment with the new practitioners whom I am sure, per my research, are on the right path. Wish me miraculous RAPID recovery. AS ALWAYS, THANK YOU FOR YOUR SUPPORT. <3
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Here's an update of Physical Therapy, as promised. ;) Doing better, going further and working harder than ever at my physical therapies this week. YAY! Boy have I been tuckered out!
Went for my "last test" to finish my steps and found I have two more steps to do. No sweat, started one yesterday. Had a wonderful time sourcing yuck meats to incorporate as prescribed by the new diet. Researching yet more Dr. solutions. STILL SO EXCITED to share SOMETHING AWESOME ...and still waiting for the green light. Trying to keep up with all the wonderful people in my life. Wiped out and busy. Forgive my lip dragging on the floor. Busy. Busy. Busy. Officially DANCING at Physical Therapy... video to follow!!!
AND some super super super exciting news I can't wait to share!!!!!!!!!!!!!!!!!!!! Alas, I must and can only tease you for now. <3 This is a new diet I have been reviewing and working my way into. I hear good things. I had pt at 2pm today and am only NOW just able to write this- PT KICKED MY BUTT TODAY. (I <3 progress.)
Egads!!!!!!!!!! Somehow this video from so long ago was missed! Beauty Vlogger ChaChaCakes gives a great explanation and supports STR's recycling program. Please like, subscribe and contribute to her channel! UPDATE: Sadly metail is NOT accepted. PLASTIC ONLY please. Thank you! And his short summary of Lyme Disease. He's still in treatment. Some day I might post an embarrassing pic of my cousin and I dancing to his music... A friend of mine posted this on youtube and I was thoroughly amused. Enjoy. Last night I walked up the stairs left foot on one right foot on the next, alternating every single step. While I still held on (for dear life), I have not been able to move my hips, knees, and feet like that for at least five years?!?!?!? :)
I'm on the second to last step of this protocol and I've received some telling compliments. People who know me well have been pleased to see that suddenly I seem "like Stephanie". Hard to figure out what to call the girl before, something like "absence of Stephanie" or maybe "the artist formerly known as Stephanie" but we can leave those ponderings for another day as she is a girl of the past! I am feeling better overall and am retaining some of my physical gains so, it was time to give physical therapy another go. I am so gratefully relieved by physical therapy and making molasses like progress but progress nonetheless. I had been so thoroughly deconditioned that a painfully slow and steady effort is the only way to retain and further gains. It is amazing how you come to work around such dysfunction, barely acknowledging it and then when you attempt to do the motion you've been working around and avoiding... you CAN'T! Then the only way to effectively do some exercises involves involuntary use of most facial muscles!!! ...but that's when you know you are working hard, right? An added bonus is that I am accumulating toys that pose as "home gym equipment" like the obnoxiously neon rainbow ball pictured above! ;) I have another Dr. up my sleeve and will be getting a thorough review in the next month. This will lead to more drugs and not drugs but I am eager to go as this one has been recommended several times throughout the years and I have reason to suspect I will respond better to this treatment moreso now than ever before. I am excited and relieved to be making such progress on so many fronts and am thinking and hoping this is the final stretch. I finally feel as though it's time to encourage people to get excited for me. Think wildly enthusiastic thoughts for me!!!!! My hair has stopped falling out en masse at an alarming rate. Goodbye Stephanie Hair Rugs! Hello awkward hair regrowth! :)
If you really want to know a lot about Lyme here's an hour of catch up. This is the Dr. I saw for a year and a half and is actually the Dr. who was able to first diagnose the Chronic CNS Lyme. We had many good talks! Holding onto the camera with both hands means I can't flail the hands around for balance. Look how good I'm doing!
Lately, I've had some health up and downs. I've been struggling to control several different issues for months now. And quite frankly, yesterday sucked. It sucked sucked sucked sucked. ;)
But every morning, for several days in a row now, I wake up and take a few fairly well balanced unaided steps. Just me and my feet moving on the floor, no hands on the walls, no knees scraping furniture, no butt on the floor. And while that may be it for the day, the chances are quite good there will be a few more that go unaided and I remember just how good it feels to move about on my own two feet. I've even had the luxury of carrying very light things in BOTH hands for a few steps. Imagine that! I also think I'm moving just a little quicker (I may be approaching molasses speed!). Several people giving me their arm have mentioned I'm barely relying on them at all and this is QUITE a change. I am so grateful for each and every one of these steps. Speaking of steps! I have three left to go. I hope they are getting easier and easier. All you positive and hopeful thoughts are much appreciated! Today is a day chock full of anniversaries. Today is my Dad's birthday. Today is the day I decided to get back on with the last few steps of treatment. Today is the one month anniversary of the day I left Phoenix and today is the day that I waited for. A month ago today, when I was more heart broken than I can describe, I met a man who blew me away. I am still dumbfounded. I waited a month as we agreed to write and already my reply has been received and returned. It made me laugh, it made me cry, it reminded me that there are things in this life that clearly happen for a reason and whether I know, understand, agree or acknowledge their potential, when they happen, they are undeniable. He told me things strangers don't say, things about him, things about me, things about life. He helped me keep looking, open my eyes wider and my heart and keep striving. He's told me several times "You are stronger than you think, use it." A month ago I had little hope of holding up to that complement. I am only now just starting to embrace it. Today I was reminded that even in that moment of intense disappointment, sorrow, and helplessness, where the world I knew shattered into a million tiny little pieces and each one was stabbing me, somehow, I helped someone and it truly mattered. It's profound to have someone be so important to you, so pivotal in your life and discover you are just as important to that same someone. To know at that moment in time you were exactly where and as you needed to be. To know that someone was truly there with you in that moment of your experience, it's monumental. It's makes all the difference. It is life or death. That honesty, that reality, that connection is life. And that is beautiful. Today brought a bunch of unaided outside rough terrain steps for the first time in YEARS.
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